My husband was recently diagnosed with Pleomorphic Rhabdomyosarcoma, a rare aggressive cancer. This blog details our journey with this disease...
Thursday, January 3, 2013
Megatron
"Megatron" is the name of the machine that treats Jon's primary tumor. This four million dollar machine can be seen here. For the last three weeks, Jon has driven to Kaiser Sunset 5 days/week for treatment. This is a rather "liturgical" season in his treatment plan; and it will come to a close in two weeks. Jon will then wait for his skin to heal and surgery will promptly follow. The surgery will include the removal of the primary tumor in his left gluteus along with adequate margins.
Four rounds of chemotherapy will follow surgery.
This is an incredibly long race, but Jon maintains a very positive attitude. He refuses to let the disease define him. Whether he is at the Mater Dolorosa Retreat Center in Sierra Madre or riding San Gabriel foothills, he is mindful of being still... even in the waves of anxiety...
And these little animals help keep it all in perspective....
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The whole thing seems so surreal, then suddenly Jojo's eyes peeking out like that, and Caleb's smile, pop us back to the reality of it all.
ReplyDeleteWhat a strange place, to be sort of enjoying the last days of megatron, since they're days before the knife.
Hang in there, it was fabulous seeing you all on New Years!
With Love and Light from the McLaughlins.
I have been praying!!! Love you guys!!!
ReplyDeleteNancy
I think of you daily
ReplyDeleteI'm praying for you. Jon, you are so brave. Sarah,you are such a wonderful support system all by yourself. :)
ReplyDeleteAnd, of course, we're all here with you.
Much love,Marsha
We continue to pray for Jon and all of you. Cute photo of the boys!
ReplyDeleteThinking about you guys! Happy new year to you all! Big hugs!
ReplyDeleteGreg, Alli, Julian and Milo
Jon and Sarah Lynn, I LOVED seeing you last week. Your boys are yummy! You two are fantastic. Continue to "Be still and know that the LORD is God." Stay authentic. And give yourself permission to feel each emotion even though some of them may not be "appropriate." Give 'em hell!!
ReplyDeleteI love you!
Sounds like you're at mile 10 of the marathon but looking strong. You are a fighter for certain.
ReplyDeleteI look forward to a Team Dephouse run when you are fully recovered. I promise that even at my full strength, Jon, you'll smoke me.
xo
Sarah, I am thinking of you, Jon and the boys and wishing you every happiness in the New Year, Love, Anne, Benjamin and Theodore
ReplyDeleteYou're in our thoughts and prayers. Wishing you a wonder-full year ahead!
ReplyDeleteLove to you all,
Suzannah and Chadd
Jon & Sarah,
ReplyDeleteErin and I are looking forward to seeing you in a couple of weeks.
We'll be bringing the love from G-Rap!
-Nate