My husband was recently diagnosed with Pleomorphic Rhabdomyosarcoma, a rare aggressive cancer. This blog details our journey with this disease...
Friday, October 26, 2012
Decision
Jon will be admitted to Baldwin Park Hospital at 9am Monday to begin chemotherapy. This decision arrived after many deliberations. All doctors agree there is no "right" answer, but we decided to go with chemotherapy before surgery for a number of reasons. 1) Dr. Sant P. Chawla, http://www.sarcomaoncology.com/s_cv_Chawla.html , strongly recommended chemotherapy before resection. His opinion arrived at our door through some glorious circumstances; and we felt we should listen. This decision will give Jon's team an opportunity to "observe" whether or not chemo is working on the tumor. If it doesn't work, there are a number of other "options" they can attempt. Without a biological marker, there is no way to know. Jon will stay in the hospital Monday-Thursday or Friday and then return home to rest for two weeks. He will receive chemotherapy treatment for seven hours each day. This is all we know...and we are walking forward in faith that this is a good decision.
This is an overwhelming time; and we have not fully ingested the reality Jon has cancer. We are grateful for our village; and we move forward with open hands.
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Praying!!!!!!!
ReplyDeleteNC
Let us know if Jon would like a visit in the hospital.
ReplyDeleteI hope having a path chosen will bring some peace... now at least the battles become daily ones you can bite off one morning at a time.
All our love and hopes go with you. The McLaughlins
Sending prayers from the east coast. You are loved from shore to shore!! The Morris clan is praying hard!
ReplyDeleteSarah, thanks so much for taking time to update. We can pray for the specific things happening. You have an awesome support of friends, family and church. We are praying continuously for God to heal Jon completely. You are a strong Woman. Hold fast to your faith in Christ, and take it 15 minutes at a time. We love you all.
ReplyDeleteAmy and Steve Wagner
Thinking of you guys every second and praying!! Thank you so much for keeping these updates going. It's so hard to believe this is happening. We love you so much!!! - Alicia
ReplyDeleteI'm so sorry you have to go through this. I know Jon will beat this, but I'm so sorry you have to go through this.
ReplyDeletePraying for Jon and you today as he starts his path to beating this today. Love and prayers!
ReplyDeleteMay G-d give you peace and strength. Know that we are with you. Not a blessing or a prayer goes by that you guys aren't part of!
ReplyDeleteThanks for the updates. Thinking of you, missing you, praying for all of you. We love you so... agree with Henry, hoping that now that a plan is in place, you can start tackling each day. With love, prayer, and hope...
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